Wednesday, February 3, 2010

A day out after the snow!

Yay! The kids go back to school tomorrow!!! Actually, I can't complain today! Gracie went with me and Asa to therapy. When we came home, Cade and Anna had the house clean. They dusted and vacuumed!! It really looked great!!! And I really enjoyed Gracie being with me too! Maybe I'll homeschool.....oh, wait, I'd have to teach not just make them do chores! Nevermind!!!

Asa used his Theratog suit again. He walked on the treadmill with it on. Then he used the same harness and walked around the therapy gym. Nancy said his steps are good. I think they are tiptoes and side steps but she said that is to be expected.

We also chatted about his bottom scooting. I'm hesitant to be too excited because he'll always do what is easiest for him. If it is easier to scoot and he can get where he wants, then why would he try to crawl and walk? Nancy said not to worry so much about it. This is first time Asa is able to want something and go for it. We have noticed that he started pointing at things during the same time he started scooting. Maybe it was just a development boom or maybe he realized he had options!! Nancy even said there is a train of thought that has little bittys like Asa in power chairs!! I can't imagine that. Although he'd be able to chase the big kids!! She wasn't suggesting it for Asa, just that conventional wisdom would say giving them an easy way to move would stop their development and that isn't the case. Interesting....I think I'll do some googling next!

Asa had his applesauce and beenie weenies at supper tonight. He ate alot. We stopped the motility meds so as much as I want to push, I'm not. If he gets sick we need to know if it is from lack of motility or from eating something that disagrees with his tummy. He has been gaggy the last 2 days and even got sick tonight.

I treated Gracie to McD's for lunch today. I plugged Asa's feeding tube up and then sat down to eat. When I looked over at him, he had part of the tube in his mouth chewing on it!!! It was so funny to see Gracie eating her burger and him eating his feeding tube! I got excited thinking maybe he wanted to eat so I pinched off a fry. When I offered it to him he gave me the funniest look! He was happy with what he was having, thank you!!! It was so funny!

I copied this quote from a friends Facebook status a few days ago. I really love it so I thought I'd share it here!

"God doesn't give children with special needs to strong people; He gives children with special needs to ordinary, weak people and then gives them strength. Raising a child with Down syndrome, brain injury, CP or other special needs doesn't TAKE a special family, it MAKES a special family."

1 comment:

Anna said...

I "found" you on the internet while looking for a used Rifton gait trainer.(parent to parent discussion) I enjoyed reading about you and your family. Your family is beautiful!