Tuesday, May 29, 2012
Monday, May 28, 2012
We started off Memorial Day Weekend like any other Sunday. My mom made lunch for my grandparents, my family and my brother's family. We spent the afternoon on the front porch......with fans blowing full steam and sprinklers in the yard!
I didn't prompt Asa to pose like Anna at all!
Anna and Cade made ice cream cones but I told them not to let Asa see them so they were sneaking and eating them!
My brother and a bunch of kids camped out at a creek that runs on my parent's farm. The rest of us were wimps and we enjoyed the cookout and camp fire but slept in our own beds! Monday morning we headed back for breakfast**. I though Asa would walk around the camp or easier terrain but he headed straight for the cotton field! He did take a big fall but I helped him back up, cleaned the dirt out of his teeth and he walked on!
After a while my daddy carried him. Asa left that hat on for a while too!
Asa liked swinging in the hammock with a buddy. He's very relaxed! He didn't like to share though and would fuss when we tried to make him get out!
**My brother is a pro camper! He made pancakes, spicy sausage, regular sausage, bacon, fried eggs and coffee on a camp fire! It was YUMMY!
Asa likes to sit with his legs propped up! He was cleaning the iPad with a tissue. Seriously this kept him busy for a while!
Asa loves glasses!!!! I thought we were gonna have to buy some from this $4 bin! Thankfully we were able to distract him and leave!
I bought a baby gate play yard for the dogs. Turns out Asa loves it!!!! He pulled up and sat down on his own! He walked all around the perimeter. He opened and closed the gate! Once the dog came over to check it out and Asa pushed her out of the way and shut the door!
Speaking of walking..... Asa figured out the game and will NOT walk anymore! He sits down as soon as you get him into position! Smarty pants! Oh well, it was fun for a few times! We know he can do it so now we have to change our game again!
Tuesday, May 22, 2012
Monday, May 14, 2012
Thursday, May 10, 2012
Tuesday, May 8, 2012
I picked Asa up from school yesterday and he was self feeding a cupcake! And enjoying it! He was having pineapple today! Gotta love new foods!
This is Gwen. She hangs out with Asa.....a lot! She says that I have him spoiled but I say he has HER wrapped around his finger. Seriously, she can take a hard line with him and he shapes up!
Asa has started picking up his walker and taking several steps with all 4 wheels off the ground. I got a few seconds of it here but you have to catch him right at the beginning for the best shot. And you can hear Gwen cheering him on in the background!
He has also started walking while holding one hand. His other hand still has to hold something so he holds his booty!
We have to dilute Asa's Zoloft in water. He takes it at night and he usually won't drink it so we tube it. The last few days he's taken the syringe and drank it down though! It cracks me up! Tonight he drank all but the last 10ccs and then pulled up his shirt for me to tube the rest! I didn't tube him but he's a smart boy!!!
Friday, May 4, 2012
This was the scene I watched unfold when I picked Asa up from school today. He was sitting with the class at the table having a snack. As they finished their snacks the kids split up to go play. Asa scooted his little red chair back from the table several feet. Then he stood up using the cubbies for support!! He did a little bit of cruising before his teacher reminded me to take pictures!
Apparently, pulling to stand and cruising weren't enough so Asa decided to try and climb into the cubbies! This dance went on for a few tries!
Not having much success in the turning around and sitting department Asa began looking for help.
Yep, his hand is blurry because he's waving the "all done" sign.
Receiving no help from the gawkers and paparazzi around him, Asa decided he'd just have to shuffle back to his seat on his own.
I didn't get any pics of him sitting because a friend came to sit beside him in the cubby and I didn't want to use his pic without permission. I guess Asa will have to conquer cubby climbing another day. I should have put that in his IEP!
And you know how a kid sometimes falls in love with a certain toy or movie and you'll borrow it for a day just so the child will leave without drama?! This rarely happens with Asa because he has little attachment for toys, however it did happen at school one day! We had to borrow Asa's teacher's empty pill holder!! He found it on her desk or in a drawer and loved opening and closing the tops. He was determined that he wasn't putting it down and even tried to walk down the hall holding it and his walker! I was NOT allowed hold it! I'd offer and he'd pull it away from me, holding it high in the air......much more preferred way of voicing his opposition that the squeals he usually does. I finally attached it to the walker with a carabiner and he walked happily to the van with his pill sorter dangling from his walker! Funny thing though, once we got home the pill sorter lost all it's magic and was quickly discarded for other random household objects! Thankfully there was no tears when we returned it today. Anna took this pic in the van, on the way home, as I said "do you love you sorter?"! His hand is at his face in a "hug" motion. Pretty smart guy......well other than having a pill sorter as a BFF!
Tuesday, May 1, 2012
It's like when you get a mortgage. You love the house and you don't mind the payment but something about sitting behind the big desk signing a stack of papers with language you can't begin to completely decipher, well you start to wonder if you are buying a house or taking on the national debt! And that's my fear with the IEP! The school is great, the teachers are great, the therapy is great but the paperwork is a booger! Thankfully it's all in my head and I only bring the stress on myself! I do feel that I could take out a pack of wild animals for Asa but thankfully Asa's team is more like a pack of cuddlely puppies! :)
Another tough part of the IEP is hearing how delayed Asa is. Of course it's necessary but not fun! And everyone in the room just bragged about how much progress he's made but it doesn't come across on the testing. So Here's the dirty:
-gross motor-9 month old
-fine motor-20 months old
-social/emotional behavior-24 months old
-communication-16 months old
-cognitive processing-16 month old
-language (expressive)-2-4 month old
-language (receptive)-20 month old
-pre-vocational skills-8 out of 31 items tested
So, yep, at best my 4 1/2 year old has the skills of a 2 year old! Fortunately, he is about the size of a 2 year old so he could play it that way. Too bad he couldn't just hang out in a nice daycare instead of starting PreK next year. And we won't even get into K the next year! I can't breath again!
We cleared up some ends that were loose. He wasn't getting the best support when sitting. He can sit in a regular chair but like us sitting on the bleachers to watch a ball game, we are more comfortable with good support. We also went over his heat intolerance. His school is old and HOT! The AC is on or off, no thermostat. We documented the need for him to be cool and there are several rooms that are now deemed cooling rooms for him. The school has an awesome adaptive playground but I told them he probably won't be able to use it for the rest of the year. Today was 83 and humid. So sad because he loves the playground! I also documented that as we transition to full day, they will probably see more of the anxiety and meltdowns we see when he's tired, over worked or over heated! I think they are prepared but maybe they won't need the the info!
One of my big goals was to change his AT (Assistive technology) plan. He was evaled a while ago and definitely needs some technology to communicate. The proof is in the test that shows he can only make sounds like a 2-4 month old but can identify pics and follow directions like a 12-14 month old. He's got a lot more in his head than what he can get out. We started using the PECS system. It was good in small form but to be used widely he'd have to carry a book of pics around and flip through to choose a choice. Too much gross and fine motor work! I was ready to beg for an iPad but the AT consultant was all aboard from the get go! His IEP now includes an iPad for him with GoTalk ready for him to use!! I also requested he get 30 min. a week of dedicated computer work with an AT consultant. He was previously getting 30 mins every other week so we doubled his computer time!
Another huge goal was for me to get him a one-on-one assistant. His first class was so small that he basically had one-on-one help. This new class is still small (5 kids for 2 adults) but its half day and next year will be full day and larger classes. I'm told this year those classes had 7-8 kids. So more kids, more hours, more expectations, more work is gonna equal a greater need for help. He needs hand over hand or direct instruction in nearly all situations. He needs help getting to circle time. If he doesn't have direct contact then he is quickly distracted from circle time and without help he will rarely mimic any songs or hand motions to songs. Without someone making him, he'd probably be happy to just sit alone and color. And then the diaper situation. Asa isn't a quick change but a full on ordeal! The most I can hope for is that he will help pick his bottom up when I put his pants back on!
More importantly than all that physical need I feel he needs an extra close watch so he doesn't overheat, over work, get stressed or get dehydrated during the day. We have been on such a good run but have had many days where he runs a low grade fever and no other symptoms. The assumption is that his body is stressed is trying to reset itself. He's had a couple of episodes of over heating, once getting so hot that he puked and couldn't stand up until he had rested and cooled off. He has had to be taken to a coolor room on a couple of different occasions and thankfully the school had staff and his class is small enough to pull someone out for him. How long will that last though. And if he's gotten to the point that he's in a meltdown it's too late. He's missed instruction time, caused a scene and experienced horrible physical symptoms. The goal should be to prevent all this by constantly monitoring him, watching his behavior, skin color, muscle tone and the GI stuff. It's a balancing act to keep this boy going?!
All that to say that the principal said I need to take this proposal to our director of special education. The school doesn't issue the aides. So I'll gather more info and go that route. And I could be wrong and he could go in seamlessly but many days just the 2 1/2-3 hours a day is enough to have in meltdown mode at home! If anyone has any tips I'd love to hear them. I'd also be interested to know if I'm being unreasonable wanting an aide. I guess everybody would love their own aide so maybe he doesn't even really need one.
So, any thought?