We have had a great weekend! The weather has been wonderful with sunny skies and highs in the upper 50s and lower 60s. There is a feeling of spring in the air.....too bad they are predicting more snow this week! Asa even went to school in short sleeves on Friday. He rode his little Power Wheel car outside too! He doesn't turn the steering wheel at all so I just turned it so he could ride in circles. He was more than happy!
On Saturday we took a road trip to Nashville for a mito meeting with the UMDF chapter there. It's been a while since we've been to a meeting and it was great to see everyone again. They are such special people! I can't believe it's been 2 years since we joined this group! That means it's been 2 years since we got a diagnosis. Our first meeting was the same month as our muscle biopsy results! How's that for God's timing!!
Asa did great on the ride and didn't have a blow out diaper until we got home! How nice is that! He had a total meltdown but at least that was at home too!
Today was a wonderful day with our church family and then lunch at my mom and dad's! Sundays have to be my most favorite days of the week!!!
I love Asa's bedtime now that he is in his big bed! With the crib we'd rock and sing and rub his face and rock and sing somemore. Then he'd wake up when we laid him down so we'd start over! Now we just crawl into his bed and he pokes in my ear until he drifts off to sleep then I get up! I confess that I often doze off too and I like it! Laying with him also gives me time to think and pray. The way his eyelids get heavy as he is drifting off and the sound of his breathing getting slower and rhythmic....it is so relaxing! We have so much to be thankful for!
Tonight Asa showed off a new skill at bedtime. He started out playing in my ear like always and then he reached for my hands. I often hold his hands when my ears get sore from a days worth of poking. But he didn't want to hold hands! He picked up my hand, found my pointer finger and stuck it in my ear!!! I have no idea why he loves ears so much but I guess he was trying to show me! I still don't get it by the way! I tried taking my hand down and he'd grab it back. I tried just putting my finger near my ear but nope, it had to be in my ear! He tried different fingers but always went back to my pointer finger! I thought I might have to lay there with my finger in my own ear until he drifted off to sleep but he finally decided he wanted my ear back to himself!!!
Here's a pic from last week. We'd been shopping at Target before school and he took a nap in the buggy. He started off in the seat part of the buggy but threw a fit so I moved him to the back. He rode happily and then got sleepy. I propped him up on his backpack and he got comfy! He always pulls his shirt up over his belly so he can play with his button or belly button while he goes to sleep. Of course, he really prefers ears but buttons and belly buttons will do in a pinch!
And my Daddy "MacGyver"ed a wheelchair for Asa! Who doesn't have extra bycicle wheels and car seats laying around?! We are trying different seats and a basic stadium seats seems to work best. As soon as we put him in it he pushes off but then he toys with us and won't go anymore! I don't know why he won't perform with all of us standing around staring at him with our cameras out?! And this is actually Daddy's second project. He also put a car seat on a furniture dolly (mover) and tied a rope to it! Now there is entertainment for the big kids who pull Asa around and for Asa who gets to ride! I have one smart Daddy!!!