Appointments and stuff!

Asa stole my sweet tea while we had lunch!

He held on with both hands!

We made him fill out his own paperwork!

Notice the pain scale....this wasn't for how much of a pain is it to wait hours for a scheduled appointment! Had that been the case, this moma would have been a 7! You wouldn't want to see the picture for that one!!

The super long exam room at the eye center made a great place to practice steps, complete with a rolling stool!!

Look....NO HANDS! Seriously, this skill just poked its long awaited head out this week!!! He even took one step while in this position!!! I believe that is what you'd call, wait for it.....

CRUISING!!

Ok, so maybe he has a little ways to go before he can earn that title but it is in sight!!

Asa playing "Patty Cake" while his eyes dilate! Look at those red eyes!

We had a safe and pretty easy trip. We kept thinking Asa would go to sleep in the van but he was wide awake the whole time!! He was very vocal too. Lots of squeals and grunts and fusses!! I really liked him testing his vocal cords out, he doesn't do that very often!! Unless he is fussing, he can fuss with the best of them, even with no words!!!

The neurology appt was kinda a bust. After waiting in the waiting room for 1 hour and then the exam room for 30min, there really wasn't time to discuss much since we had the eye appt in 20 min! This is the second time this clinic has been sooo far behind with us. I don't mind waiting for a little while but seriously is seems like it is the norm with this clinic. Anyone else have that happen over and over? I'll just email with my questions later. Thankfully we had no pressing or urgent matters to take care of!

So when Dr. B came in he thought we were another family! It was OK though cause I was gonna ask about the same thing this family was after! Meghan, he thought I was you coming after the appeal letter! I told him he had us confused but I wanted the letter too! LOL! He is sending me one to have on hand! Thanks for having him on the ready!!!

Before we left for the eye appt. I left thank you notes for the GI and geneticist that are leaving. Is that weird? I really do like them and they were the 2 most encouraging drs we have!!

The eye appointment went great!!! They dilated Asa's eyes and he did great. The dr. checked his vision and he did great. The dr. checked the back of his eye and he did great! The boy barely moved while she held a magnifying glass to his eye and shined a light in it! He was amazing. His vision is fine and his eye itself was fine. We don't have to come back for 2 years!

While we were waiting for his eyes to dilate he had the best time stepping and scooting around the room! He was so funny and playful!

We had a great day overall! Tiring from driving 2 1/2 hours each way but we made it safe and sound. I just couldn't get Moma to pay attention and stop watching Hannah Montana that they had in both waiting rooms!!! That show is gooooood! Maybe we do need our satellite back! lol



And Cade is fine today! He has been fever free for 24 hours now. I have my doubts about this whole flu test thing. I don't want to jinx us for tomorrow but this has been the easiest flu ever! Was it the Tamiflu or a false positive test. I don't guess it matters, just glad he is feeling so much better! Now to keep everyone else well! Gracie said Cade made her wait on him today! She had to bring him popcorn and OJ so he wouldn't touch the kitchen!! Seriously I didn't want the boy anywhere downstairs!!

Tomorrow, Gracie has 2 softball games and Cade has a baseball game. The weather is supposed to be great so I'm looking forward to it!! Just got to remember to take my allergy medication in the morning!!

Thank you all for the prayers for our travels and for healing for Cade!!

On the road again!

We'll be traveling again tomorrow. Asa has an appointment with neurology and then an ophthalmology appt with a new doctor. I don't expect any surprises and just a baseline check up but prayers for our safe travels would be appreciated!

As I said before, this is a month of appointments for us. First, these 2 appointments. Then, next week, we see the ped for a well check. On the 21st, he'll have a sleep deprived hearing test....at 8am! Then, the first of May, we see the new GI. Busy, busy!!

And on top of this travel and appointments tomorrow and ball games.....Cade has the flu! He doesn't seem so sick, if you ask me! He has a fever and the only reason I took him in was because I'd be gone tomorrow and the games are Saturday!! I know, crazy! So, I was hoping he had strep that way he could get a shot and be done. But no, they did a flu test and it came back positive.

I've been keeping him isolated anyway but now we'll be extra careful! Anytime the kids sniffle or feel warm, we forbid them to be near Asa! This has gotten us through several sicknesses so prayerfully it'll work this time! Cade seems good though so maybe this will be mild. It is funny cause I've spent all winter just waiting for this to hit and it finally hits during spring break! I know Cade would rather be outside playing than inside confined to the upstairs!! Just praying this is one time he doesn't share!

PAUSE!!!

Can we just hit the pause button? Can't we just stop the clock for a little while!

Asa is 2 1/2 today!! As close to 3 as he is 2! When did that happen?!

And you know what happens at 3? School happens at 3!! We have a meeting tomorrow for his last 6 month EI goals. Next meeting will be for school transition. Then we'll have IEPs. If you don't know what IEPs are be glad....at least that is what I'm told. I won't know until Asa is 3, which is 6 months from now!

And mostly what I'm so wary of about him starting school is myself! What will I do with my mornings free? Barry said "get a job" but Asa will only go to school for 1/2 days. Who hires people for 3 hours a day? It's funny because when Gracie was almost old enough for school, I was soooo excited. I had plans for my days! Now I'm holding onto the school house doors for dear life! Who'd thunk it!

And this 1/2 birthday bring about a whole bag of 1/2 year specialist and appts. We got a yearly pass from some doctors but the biggies we see every 6 months. So this brings up some more fun. Last week we got a letter stating Asa's GI was leaving Vandy. Oh, and the GI clinic will no longer be coming to Jackson. We'll have to travel for this appt. too. And I really liked Asa's GI. So then today we get another letter today stating that the geneticist was leaving too! Now, I really, really like the geneticist. He would sit right down with us and talk like normal. Not that complicated doctor speak that always ends in a "and so, what this means for you is....". Yeah, cause that is the only part I cared about anyway but thanks for the complicated, long, drawn out lesson you gave me!

So now we have a new geneticist and new GI! The geneticist isn't soooo new to us. He is the medical advisor for the UMDF group in Nashville so we've chatted a bit. Funny thing, I emailed him to see if he had a GI preference for Asa, with the mito and all. Who knew he'd be our geneticist too!

And I'm sure that was long and rambling so forgive me!

Now on to Gracie. She'll turn 7 in 2 weeks. Really, when does this stuff happen!! Do they grow while I'm sleeping! So she was standing next to me last week and I noticed how tall she is, like a big kid. I tried to bargain with her and let her turn back to 5 on her birthday instead of 7. She said no. Well, at least I tried.

On a serious note, could ya'll remember a little mito friend in prayers? Her name is Brigid and she is very, very sick. She has battled much more than I can imagine. And now she battles again. This is wearing on her little body and the bodies and minds of her family! Please mention Brigid in your prayers tonight!