On Friday, after we picked the kids up from school, we all took some clothes to a consignment sale. Then we played with some ducks at a nearby pond. While we were in the car. Yes, we were in the car and played with ducks! We stopped so Asa could see them but when I opened the van door on his side, the ducks came running!! They though we had food. I really, really wish we had some.....they seemed hungry! We pulled on down to see some geese and the ducks followed us. We were all laughing so hard. Asa though they were funny too. Those ducks even turned around and started following us out of the parking lot. I'm not sure why we all went to the clothes drop off but we had the best time laughing about the ducks! It doesn't take much to entertain this family!!!
Saturday morning we had a children's activity at church. A missionary from Brazil came and spoke. It was so interesting. I can't imagine that kind of life. A life of travel and not being at home. Learning a new language and culture. I'm more of a home body! I'm not sure of my gift but I'm pretty sure God didn't plan on sending me to a foreign country. The kids made bird feeders to bring home and share with our feathered friends.
Saturday afternoon we went for pizza with some friends. We all sat and talked so long. With Asa we usually pick an off time to eat. The restaurants are less busy so it works better. Our family calls it Lupper.....lunch and supper! In the end, Cade and Gracie went to the movies with our new friends! They had so much fun! I'm hoping they behaved!
Sunday we celebrated Cade's birthday with family. He had 2 boys from school spend the night and they played and played!! Gracie hung right in there with them. It is pretty funny because she is only 2 years younger than the boys and we keep saying they may look at her differently when they are Seniors and she is a Sophomore!!
And then last night we got more snow!! I can't remember getting 3 good snows in a single winter, much less 3 in 3 or 4 weeks!!! Thankfully the boys brought there snow gear so they all played outside this morning and this afternoon! Oh, and Anna had a friend over last night! That means 7 kids here!!!
Asa handled all of the activity pretty well. He was really clingy last night. I couldn't put him down at all. He'd just cry and fuss and scoot around behind me! I put him to bed before 7pm knowing he'd probably get up early but it was worth it at that point! And of course the woke up at 5:30 this morning!
He wasn't as clingy this morning. In fact he was back down for a nap when the boys got up. Then this afternoon he scooted into the hallway for Cade, Anna and Gracie's rooms. He scooted to each door but didn't really go in a room. He played and played all by himself for soooo long. Even when we made eye contact, he'd just grin and go right back to playing!
This afternoon Gracie worked on a school project. She had to make a robot out of stuff she found around the house. One thing she used was toilet paper!!! Asa loves toilet paper! He scooted up to the robot and she'd move it. Then he scoot over to it again. Then he started pushing it around because his legs would push the base before he could get his hands on it!! It was so funny!!! I couldn't believe he was trying to "play" with her robot!!
Sounds fun and busy!
ReplyDeleteI was just reading the history of your little guy and was wondering if you know the difference between mitochondria myopathy and and mitochondria cytopathy? Hudson has cytopathy...I guess I could google it....just curious.
Debbie, cytopathy means "cell". They are all mitochondrial cyotpathy. Then some have more muscle involvement and it can be called myopathy, meaning muscle. Or if there is more brain involvement is can be called encephalopathy. At least that is how I understand it....I could be wrong.
ReplyDeleteI really love reading your blog!! I found it through Heidi, who has been an inspiration since Asa was first diagnosed as just hypotonic (floppy). You both amaze me!!!
Hugs to Hudson and all of you!!
Thanks for clearing that up...the crazy thing is that Hudson's muscles,brain are hugely impacted by this disease...I despise it all..no child should endure what these kiddos go through.
ReplyDeleteAsa looks great and healthy.
You are very kind...I actually met Heidi and Jack at Childrens...what a cutie pie Jack is!
It is really great having other mito mom's with the same Doc's...a great connection.
Thanks for reaching out to us and joining this blog world with us...the support and heart connections are a huge part of walking through this.
God has put some amazing people in our path through this journey...
Blessings and hugs-Deb