tag:blogger.com,1999:blog-3243072766790323714.post6619529737224452788..comments2023-04-24T11:05:06.913-05:00Comments on Celebrating Inchstones: Fun weekend!Kim and Asahttp://www.blogger.com/profile/16526009830370568945noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-3243072766790323714.post-47212337304863121912010-02-15T23:54:05.271-06:002010-02-15T23:54:05.271-06:00Thanks for clearing that up...the crazy thing is t...Thanks for clearing that up...the crazy thing is that Hudson's muscles,brain are hugely impacted by this disease...I despise it all..no child should endure what these kiddos go through.<br />Asa looks great and healthy.<br /><br />You are very kind...I actually met Heidi and Jack at Childrens...what a cutie pie Jack is!<br />It is really great having other mito mom's with the same Doc's...a great connection.<br /><br />Thanks for reaching out to us and joining this blog world with us...the support and heart connections are a huge part of walking through this. <br /><br />God has put some amazing people in our path through this journey...<br /><br />Blessings and hugs-DebDebbiehttps://www.blogger.com/profile/12469385508031005419noreply@blogger.comtag:blogger.com,1999:blog-3243072766790323714.post-89487108453549467572010-02-15T20:38:10.856-06:002010-02-15T20:38:10.856-06:00Debbie, cytopathy means "cell". They ar...Debbie, cytopathy means "cell". They are all mitochondrial cyotpathy. Then some have more muscle involvement and it can be called myopathy, meaning muscle. Or if there is more brain involvement is can be called encephalopathy. At least that is how I understand it....I could be wrong. <br /><br />I really love reading your blog!! I found it through Heidi, who has been an inspiration since Asa was first diagnosed as just hypotonic (floppy). You both amaze me!!!<br /><br />Hugs to Hudson and all of you!!Kim and Asahttps://www.blogger.com/profile/16526009830370568945noreply@blogger.comtag:blogger.com,1999:blog-3243072766790323714.post-75631546416129337282010-02-15T20:31:49.894-06:002010-02-15T20:31:49.894-06:00Sounds fun and busy!
I was just reading the histo...Sounds fun and busy!<br /><br />I was just reading the history of your little guy and was wondering if you know the difference between mitochondria myopathy and and mitochondria cytopathy? Hudson has cytopathy...I guess I could google it....just curious.Debbiehttps://www.blogger.com/profile/12469385508031005419noreply@blogger.com